• Helping Surgeons Learn from each other and their data

    Improving outcomes & quality through

    Collaboration

Overview

In 2017, five founding organizations, along with a multi-disciplinary group of stakeholders (representing patients & families, heart center leadership, NHLBI, professional societies, CHD foundations, QI/research experts) came together to collaborate to address these challenges.

Vision:  To accelerate improvements in health outcomes for patients with pediatric and congenital heart disease by uniting and aligning networks, organizations, and stakeholders across the field to advance research and improvement efforts through collaboration

Reach:  Represent >65 cardiac programs across North America, span multiple phases of care:

PC4 (cardiac ICU)                              PAC3 (pediatric cardiology inpatient ward)

ACTION (heart failure)                       NPC-QIC (single ventricle patients)

CNOC (neurodevelopmental outcomes)

Our Mission 

Our Commitment  

PC⁴ will be an international leader in the effort to improve care to critically ill patients with pediatric and congenital heart disease. The Data Coordinating and Analytic Center (DCC) for PC⁴ is housed within the Michigan Congenital Heart Outcomes Research and Discovery (M-CHORD) Program at The University of Michigan C.S. Mott Children’s Hospital.

The DCC is responsible for communicating with participating sites, coordinating the efforts of our partnering vendors providing data collection capabilities and data feedback to the sites, developing and implementing risk adjustment models for benchmarking, and analyzing comprehensive registry and research data collected within PC⁴. These data will be used to examine variation in outcomes and practice patterns, generate new knowledge linking processes of care to outcomes, and identify best practices and opportunities for quality and efficiency improvement.

The DCC will support participants in establishing quality improvement goals, conducting rigorous science, and in implementing evidenced-based practices. DCC personnel include a dedicated project coordinator, data manager, biostatistician, and quality improvement expert. Dr. Sara Pasquali is the Director of the Data Coordinating Center for PC⁴ and oversees the DCC functions.
Coordinating Center